PPlog

2. Introductions Jenny welcomed everyone to the meeting and asked how we were all feeling. Generally people were feeling ok but were finding the amount of Zoom meetings tiring. Andrew, Olcay, Joanne, Kieran, Chris and Eve attended The Clarity Project - Supporting Decision-Making second session about 1 Session 3 is about Lasting Power of Attorney and Deputyship - 13.01.2021 7:30pm – 9:30pm People who attended fed back to the rest of the group. Olcay spoke about her feelings about the use of the term ‘burden’ when speaking about people with learning difficulties. We then spoke about terminology such as, ‘ burden ’ , ‘ challenging behaviour ’ and ‘ vulnerable ’ ....

On October 20th I wrote:  I have COPD and... some of it’s recommendations such as reviews at home using tools like ‘microspirometery’ are inaccessable for me because they rely on the patient having a smart phone. once again; I’m unable to use a smart phone as I have Essential Tremors - my fingers dance all over the place so tapping at any target is impossible! -  Yet another example of social discrimination. On Monday of this week beginning 30th November, ROFA, the Reclaiming Our Futures Alliance (an ironic title in this instance) announced their new project "Liberation" they said: " To get involved and to sign up to the campaign check out the dedicated page on the ROFA website:  https://www.rofa.org.uk/nilss_project/ " Eagerly I did as it said and - would you believe it! - to sign in to join 'LIberation' you have to go through a sequence using your smart mobile phone! They say, and this was checked today, 7th December: "We have asked people to answer t...

Personal rambling All my life partners (all women) have, to one degree or another, said I am ‘difficult.’ and ‘obsessive.’ Neurodiverse? Maybe:   As a teenager I collected a label of ‘Moody’ from my girlfriends but that showed up later in life as a problem with a periodic cycle of depression. As far back as I can remember I carried painful anxiety; a tight wad of inexplicable fear - based on nothing I could think of, lodged just below my rib cage. I hefted this around in the background of everything I did until I was in my thirties when it disappeared for no tangible reason. But all my activities were still performed to a good, principled and sometimes high standard, despite my friend in the background.   I’ve never been able to make small talk and have always avoided situations like parties or social groups in the pub. I have though, throughout my working life, excelled at talking in groups on a specific subject; possibly for too long and loud, to my detriment. Always happy o...

In line with My posting of 25th October there is another devastating October report published. This is: “Out of Sight - Who Cares” from the Care Quality Commission. It’s available at:     https://www.cqc.org.uk/publications/themed-work/rssreview This is hugely important reading. Those who don't bother and don't join the clamour to oppose this degradation are guilty of prolonging this corporate malice.

Mike Llywelyn Cox 3 0   O c t o b e r   a t   1 5 : 4 4    ·  Shared with Public   I copied this (original posted on the British Lung Foundation site) to our village discussion site. The responses astounded and upset me. These respondents appear to be denying that disability exists and, if it does, no account should be taken of it. Is this an example of the national position?     A new inhaler (Anoro) has made life a lot easier and I went for a rollator walk today. I sighed again when I got here. If there was a decent surface on it I could, with the rollator, walk up it to the playing field and village hall. But the authorities, despite many years of pleading with them, will do nothing about it, saying they can't find out who owns the lane. I think it's common land but........   Examples of the responses (with names and places removed) are:   "... there is adequate level step free access via Xxxxx Wa...

  There is a new report by NDTI (National Development Team for Inclusion -  advocacy@ndti.org.uk ) and Voice Ability, the champion for people with mental ill-health conditions and learning disabilities ( https://www.voiceability.org/ ). Taking notice of this report  is of great urgency, detailing as it does the bad treatment afforded to our most vulnerable citizens by government and its associated institutions. Extracts say: "Blanket decisions about access to treatment and visitors are being taken without clear justification, including enforced confinement, denying access to outdoor space or gardens, and preventing leave for people who are on mental health wards. Half of advocates reported care providers had stopped all visits and almost half (47%) reported that people were being confined to their rooms…." and: "A lack of understanding of people’s rights under the Mental Capacity Act (MCA) is a common thread through many responses. Advocates reported ...

I have COPD and I've just read this excellent  document. However, some of it’s recommendations such as reviews at home using tools like ‘microspirometery’ are inaccessable for me because they rely on the patient having a smart phone. once again; I’m unable to use a smart phone as I have Essential Tremors - my fingers dance all over the place so tapping at any target is impossible!   Yet another example of social discrimination.   The URL for the report is https://www.blf.org.uk/your-stories/restoring-care-for-patients-with-lung-disease