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Showing posts from October, 2021

Covid19 Project

Long Covid Project People First (Self Advocacy) is one of six organisations working with National Voices on the Long Covid project. Our role is to make sure the experiences of people with learning difficulties, disabilities and autism are included in this work. The National Voices project purpose is to:  Support voluntary sector organisations work together to gather the experiences of the people they work with, and make a joint response about the challenges of Long Covid  Provide a voice for those facing exclusion from the health system. 1  Influence the work of NHS England and NHS Improvement We have been asked to run some Focus Groups in October and November with people with learning difficulties, learning disabilities and autism. We will also send a questionnaire to advocates and other people who work with people with learning difficulties, disabilities and autism. We want to hear from people who have had Covid-19 or someone close to them has had Covid-19. If you would l

People with learning disabilities – COVID-19 Support and Action Group Wednesday 29th September 2021

1. Present Andrew Kieran Philipa Apologies: Peter Sarah Simone Firielle Joanne Olcay Ray Charles Geraldine Jenny Gary 2. Introductions Andrew welcomed everyone to the meeting and asked everyone how they were feeling. Andrew reminded everyone that we use the same Zoom link every week. Time: 12:30pm-2:30pm https://us06web.zoom.us/j/97471173675 Meeting ID: 974 7117 3675 1 We all recognise that speaking up is important. The question is HOW. Where we do we start if we want people to come to us anytime they want to know what people with learning difficulties think? What are the steps? Simone: I think we need to have a real conversation about working from home and support. Andrew: Support is a category in itself Geraldine: What support are you thinking is needed Simone? Simone: Because I do paid and unpaid work, I’ve noticed as more people are working from home, it’s more difficult to get people to see beyond peoples 4 walls, and maybe we need more flexibility. It’s very hard not meeting u