Wednesday, 10 March 2021

Ancestry

Children of Ann and John Jones

 

To show why so many of us in and around Llandudno are to some degree related to each other!

This is just a summary for others to build on.

 

Evan Jones b 1859 at Pen y Gaer, Llanwyddelan.Evan emigrated to America, I can vaguely remember him coming to visit us when I was small, he lived in Pittsburg, and married a girl named Ellen.” (Rose's Journal). In 1871, Evan was living with his M&F on Lloyds Passage, Welshpool. He returned to Wales and is down on the 1901 census, aged 41 and living, with his wife, Ellen, and children at 3 Pentyrch, Llanfair Caereinion. Children: (1901) John; David Richard and Thomas Evan. Hilda Mcsorley's Ancestry tree says he and Ellen were married on 30th June 1883 at Conway and he died about 1903 in Llandudno.

 

Jack Jones b 1861 in Welshpool. “Jack was, in my Mother's words, a "bad boy". When quite young he rode a horse till it collapsed, and earned the nickname "Jack Turpin" - a name that stayed with him and his family for life. He went to jail for being cruel to the horse and then joined the Merchant Navy. I knew him well in the years that followed and thought him a fine chap. He married and raised a family who were well known in Llandudno as the 'Turpins'. (Rose's Journal). I can find nothing else currently, especially about Jack's marriage and family.

 

Sarah Jane Jones b 1863 in Welshpool. The Family had moved to Llandudno in the early 1870s so it looks like Sarah Jane remained in Welshpool, maybe because she had a job. In the 1881 Census she is living in Barley Green Lane, Welshpool as a domestic servant. The 1891 and 1901 censuses show nothing of her. There is though, a marriage record in Burnley dated 1890 with her father recorded as John Jones. Not impossible!

 

According to Hilda Mcsorley’s tree on Ancestry, Sarah Jane married Hugh Jones, Farmer, in 1888. They had two children, Sarah Winifred (two) and Thomas E (one). The 1891 census also has 17 yr old Elizabeth Jones, niece and servant, and Sarah Jane Jones age 13, niece. Living at 41 Cammenfawr, Llanfyllin. And Gwen Watkin 16yrs, servant and ‘Horse Waggoner.

 

In the 1901 census they were living at the same address, Sarah Winifred 12 and Thos Ellis 11. They now employ two servants. In the 1911 census they at the same address, both children are working for them and they have one servant.

 

In the 1911 census they at the same address, both children are working for them and they have one servant

 

Lucy Jones b 1867 (Stallard) Rose's Journal says: Lucy married my Father's brother Bill (Fred Stallard’s brother), and settled in Bolton.

 

She is 3 in the 1871 census (in Welshpool).

In the 1891 census, Lucy is married to William Stallard and they are living in 100 Church street, Middleton, Lancs. They have a 3 month old son, Charles. 1901, they are in Greenwood Lane, Bolton with Alice? 7, Albert Edward 5, Charles 2 (they must have lost the original Charles) and William 4 mths.

 

Rose Jones (Stallard) b1869.

 

1881 Census. 1 Cottages, Jones Yard, Back Madoc Street, Llandudno with M&F, Ann 14, Rose 11 (mistakedly down as 'Rosa'), Polly 9, Maggie 8 and Elizabeth 6. 1891 census: married to Frederick Stallard. Living in 7 Dylys Cottages, Back Madoc Street with just Charles and Molly. 1901 census, Rose and Frederick living in 5 Jones, Owens Yard with: Charles 12; Molly 10; John (Jack) 8; Robert 7; Nora (Tillie) 4; Fred 2; and Mary 2 months. 1911 census, Family living at 45 Alexandra Road (Mam always told me she was born in Back Madoc Street; as she was born on Christmas Day 1910, they must have only just moved here). Charles 22; Jack 18; Robert (Bob) 17; Fred 12; Mary Elizabeth (Mellie) 10; Rose 7; Ellen (Nell) 5; Lucy 2; Marguerite (Madge) 3 months. Molly would be 20 at this time and then married to Leonard Goodey, both living at the Central Hotel, Llandudno. (Rose was my Nain: Mike Llywelyn Cox).

 

Polly (Mary) b 1871.

 

1881 Census (as for Rose, above). 1891 census with John Jones (Jack Yr Ogo) in 5 Dylys Cottages, Back Madoc Street. + two lodgers. 1901 census. Jack (35) and Mary (28) living in 'Refail' Llanrhos with Rose 9, Fred 7, Jack 5, Primrose3, and David 1.

1911 census Living at 6 Tyn Y Coed, Gt Orme, Llandudno, John is 45, Mary is 39, children: Fred 17, Miriam 13, David 11, Mary 8, Gwen 6, Eleanor 4, Alun Lloyd 2, Daniel 7mths. John (Jack yr Ogo) and Fred are down as Fishermen.

 

My best search says EDWARD GOODEY JONES (Ted Yr Ogo) was born January, !913. Ted died in 1965.

Brother, Bernard Kitchener Jones was born in 1915 and died in 1940 fighting in world war two.

 

These were the decendents of Isaac and the famous Miriam yr Ogo. Jack yr Ogo was their son.

 

 

 

Maggie b 1873.

 

1881 census: aged 8 and living in the same household as Rose, above. 1891 census: Can find no record of Maggie. However, Rose's Journal says: “ My mother (Rose Stallard) went into service at the age of 12 years. She worked at an hotel named Birmingham Arms.” I think it safe to speculate that Maggie did the same as her sister and went into some kind of 'service' (she would have been 12 in 1885). The family had split between these two census dates.

 

In the 1891 census, John & Ann are living in 5 Owen's Yard with Elizabeth 15yrs and Harry 3 yrs (Rose's Journal says “...my mother adopted a boy, who she named Harry, before CHARLES was born”). Harry is down as 'grandson.'

 

1897 Maggie was with Griffith Hughes at 'Tanybrisiau', Llangwstennin where their daughter Annie was born They remained there and raised their children: Annie, Hugh, David, John, Jennie, Thomas and Griffith (Griff Hughes, Builder).

 

Elizabeth (Betty) Jones b 1874.

 

1881 Census. Living with Mother and Father in 1 Cottages, Jones Yard, Back Madoc street (census indicates it's an upstairs dwelling) with siblings: Ann 16, Rose 11, Polly 9, and Maggie 8. This means the family must have moved to Llandudno between the birth of Elizabeth and 1881, probably later in the period. Their means of travel remains a mystery. John was already there plying trade with his horse and carriage, so it was just Ann with the children. There are accounts of them getting from Liverpool to Llandudno by boat; but if that is so, how did they get from Welshpool to Liverpool?

 

1891 Census. Living with M&F and Harry 3 as above. She is 15. In 1895, she married George Beaumont. Their children were: John Herbert 1897, George 1898, Susanah 1901, Rose 1903, William 1905, Sydney 1907.

 

Elizabeth (Betty) Beaumont (nee Jones) died in 1910.

 

My Uncle Fred Stallard (b. 1889) married Rose Beaumont on 16th July 1924.

 

Ann Jones died in 1898, John Jones in 1903.

 

 

Wednesday, 3 March 2021

People First Support and Action Group 24/02/21

People with learning disabilities – COVID-19 Support and Action Group

Wednesday 24th February 2021 1. Present

Chris Firielle Phil

Peter Eve Kieran Joanne Simone Gary Sarah

2. Introductions

Chris welcomed everyone to the meeting. Andrew, Jenny and Joanne were unable to make the meeting this week. Other apologies included Gordon and Kweku.

3. Discussion

We spoke about the announcement about

https://www.bbc.co.uk/news/health-56181154

Everyone on the GP priority register for people with learning disabilities.

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We watched Jo Whiley’s video and quoted some tweets where most of the credit for the decision was being given to Jo Whiley and Mencap.

While we appreciated the profile raising others do, Jo Whiley had said that people with learning disabilities couldn’t fight for themselves. A tweet was sent to share our Covid-19 statement to show that we were able to speak up and fight for ourselves.

COVID’s Saba Salman interviewed Andrew for the article she published 16th February ‘At greater risk of dying but not a vaccine priority. Covid’s Mental Health Impact on the Learning Disabled’ https://bylinetimes.com/2021/02/16/at-greater-risk-of- dying-but-not-a-vaccine-priority-covids-mental-health- impact-on-the-learning-disabled/

 

4. Review of action agreed at the last meeting

1. Find out how we can be involved in the Mental Health Act Reform consultation.

The consultation is open until 21st April 2021.

Mental Health Act 2020 (dhsc.gov.uk)

The group agreed to have this as a main topic for a couple of sessions in March.

Chris to email dates for possible sessions with Sophie O’Connell

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2. Confirm a date for Svetlane to come to another meeting. Andrew & Sarah

3. National Lottery Community Fund – Partnerships

This fund is open and would be a good fit for continuation funding for the group. A partnership of existing self-advocacy organisations in the group could apply together.

To do - Andrew & Sarah

4. Share plan for the event and check dates are ok with the funder - Learning Disability England

Andrew & Sarah

5. Information Share

Chris: Two homes closed in Cornwall because of cases of neglect.

Simone: All people who have had detention or CTO decisions without face-to-face assessments will be reviewed. Simone also said that Liberty is looking at support bubbles and blanket rules within residential units.

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Next Clarity session Tuesday 2nd March – Challenging the Care Act
CLARiTY Session 5: Challenging Care Act Decisions Tickets, Tue 2 Mar 2021 at 19:30 | Eventbrite

Christopher’s artwork from the session

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Wednesday, 10 February 2021

Fossil fuel air pollution responsible for one in five deaths worldwide.

This is from the British Lung Foundation, HealthUnlocked site (https://healthunlocked.com/)
 
The study shows that more than 8 million people around the globe die each year as a result of breathing in air containing particles from burning fuels like coal, petrol and diesel, which aggravate respiratory conditions like asthma and can lead to lung cancer, coronary heart disease, strokes and early death.
 

Thursday, 4 February 2021

People First Session 27/01/2021.

It’s a shame the LD GRAPHICS and especially Christopher’s Artwork doesn’t copy but I don’t know how I can get over this. Sorry.

 

People with learning disabilities – COVID-19 Support and Action Group

Wednesday 27th January 2021 1. Present

Andrew Firielle Kieran Patricia Sarah

Joanne Peter Simone Olcay

Jenny Gordon Russell Eve Christopher Darren Gary Philipa

Guest speaker: Svetlana Kotova (Inclusion London)

2. Introductions

Andrew welcomed everyone to the meeting and then Jenny asked how we were all feeling.

Generally everyone said they were feeling ok and also shared what they had been doing.

Peter has featured on the Nicky Fox piece on the news and Gary had been filmed by BBC South about the phone buddies project.

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3. Review of action agreed at the last meeting

1. Find out how we can be involved in the Mental Health Act Reform consultation.

The consultation is open until 21st April 2021.

Mental Health Act 2020 (dhsc.gov.uk)

A tender opportunity is out asking for an organisation to facilitate consultation events.

2. Find out what scams are going around about Covid- 19 vaccinations

All – still to do

3. Invite Lisa Proctor to a meeting to discuss Peer Support in the NHS.

Philipa asked Lisa, date to be agreed.

4. Draft a letter to Wirral Council about the consultation. Draft letter sent to Jenny, Kieran and Russell

5. Contact Anna Bowden at the Guardian about writing an article

Philipa

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3. Discussion with Svetlana Kotova

Svetlana works for Inclusion London and is responsible for campaigns. She is a lawyer and informs people about their rights and how to use the law.

Some of the things we wanted to know about were:

  •   What are our rights to support during Covid-19

    (How does the Covid-19 Act affect this?)

  •   How is reduced support affecting people’s ability to

    work and go out?

  •   The impact of loneliness and isolation

  •   Are care assessments happening? Can Local

    Authorities refuse to do them?

  •   IQ levels and thresholds to care 70/71

  •   Support plans for couples – boundaries of care

    Svetlana said the following:

    All people who have support needs have the right to care and support. This remains the same under the Coronavirus Act with only very small exceptions to people under Continuing Health Care and speeding up the discharge process to free up hospital beds. The changes set out in the Coronavirus Act have not yet been implemented.

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We all have a right:

To social care
For our human rights to be respected Not be treated badly because of our disability
To get accessible information if needed
To receive health treatment if the resources are available and a doctor agrees

 

During the pandemic, hospitals have had to assess patient safety if treatment is needed.

 

Carers are able to go into people’s homes as long as all the rules are kept to, help people with travel and meeting up with others.

 

It is the Local Authorities responsibility to make sure people have support and all their essentials.

 

We discussed ‘reasonable adjustments’. Many front line workers aren’t aware of what it means. Svetlana said this is common. Is it that they don’t know or ignore it?

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GPs can decide whether you can have a face-to-face appointment. They can refuse if you have Covid-19 symptoms, but if you really feel a face-to-face appointment is necessary then you can request one.

 

We discussed ‘shielding’. Some people said it was not a useful policy and was used by some providers of care as an excuse to withdraw support.

 

Svetlana spoke about the right to a care assessment. If evidence of an impairment or support need can be provided (now or in the past), then you should not be refused a care assessment. This is in the Care Act.

 

We also discussed how some people are not following the rules, but acknowledged that some people have exemptions (for example, they don’t have to wear a face covering if they have breathing problems or anxiety issues).

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There were many more questions but due to time had to stop. We agreed to arrange a date for Svetlana to come back.

NHS England tender

There is an opportunity to tender for a 6 week piece of work to produce an easy read housing guide. Philipa described what the work entailed and asked the group if they would like to be involved.

Everyone agreed in principle. More details will be shared.

National Lottery Community Fund – Partnerships

This fund is open and would be a good fit for continuation funding for the group. A partnership of existing self-advocacy organisations in the group could apply together. Sarah will follow this up.

Research Warwick

Here is the link to the study website: www.covid19learningdisabilities.co.uk and our project twitter page:

 

5. Information exchange

Coronavirus and Learning Disability Study

(@CoronavirusLD) / Twitter

for information about the

study.

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CLARITY Session 4: Listening Session

Tuesday 9th February

https://www.eventbrite.co.uk/e/clarity-session-4- listening-session-tickets- 136792974469?aff=erelexpmlt

2021 7.30pm-9.30pm

 

6. Action agreed

1. Arrange a date for Svetlana to come back to the group.

Andrew & Sarah

Christopher’s artwork from the session - on the following page

Saturday, 30 January 2021

Basic Biog

My Basic Biography

Basic Biography of Mike Llywelyn Cox

e mail: meicox@yahoo.com


d.o.b.: 05.06.1938


Background


Background

I was born and grew up in Llandudno, north Wales on a small council estate. From a working class family in the poorest part of town I passed for Grammar School but, although in the A stream throughout, I engineered my departure at age 15, rebelling against the gross class distinction and snobbery there.

I served a five year apprenticeship with the Wales Gas Board and practised as a Gas Fitter in Llandudno, London, Shropshire, Denbighshire, Guernsey and back to Llandudno until 1968 when I started pre-professional work as a trainee child care worker.




Married three times, I have lived with my present wife and her large and loving family here in rural Norfolk since 1980.

My first divorce was characterised by my wife’s stated determination to make my children hate me and to make sure I never saw them again. I was working as a trainee child care worker then, helping to care for many children who were casualties of marriage separation stress, falsification and ambiguity. I knew any attempt to contact my children would be blocked - any correspondence even birthday and christmas cards would be shown into the fire without the children knowing. Because of this I vowed, for the sake of the children, not to try to see or contact them - I dearly loved them but couldn’t bring myself to risk harming them. For the same reason, in spite of horrific lies in her divorce statement, I did not contest that statement or the subsequent own child adoption she and her new partner took out.

My first wife's treatment of my children was horrendous and my only recourse to prevent further harm was to sacrifice my continuing relationship with them. Those malicious actions by my wife have now been judged as illegal. See below:

In Psychotherapist, Karen Woodall's blog on 12/10/2020 she reported that: "Inducing alienation in a child is abusive. The Family Courts in the UK are clear about that and case law establishes it. In fact not only does case law establish that alienation in a child is abusive, it establishes that behaviours which may lead to alienation are abusive. Recent Appeal and High Court decisions have made it clear that the Court has a duty to act in such circumstances and to do so before the alienation becomes serious. This makes it clear that alienation of a child is real in law and that it is child abuse."




Brenda, my second wife was a beautiful, caring person. She went with me to Plymouth to support me through social work training at the then Plymouth Polytechnic (now University). She nursed me through my problems there, including a mental breakdown from the loss of my children and being disabled by a trapped in my neck./p>

We were married after I qualified. My first social work job was in North Devon and we were both happy there. However, home sickness took over once again and I grabbed at a job opportunity in Rhyl in Flintshire. I was moved to the Colwyn Bay office with the 'Maud' local authority reorganisation in 1974.

We were separated when Brenda threw me out after I told her I was resigning from Clwyd County Council because of their constant incompetence and breaches of professional ethics. I don’t blame Brenda for that - she had helped and supported me to become a practising professional social worker and didn’t want to see it all go! My resignation though, was vindicated later by the revelations of the North Wales Child Abuse Inquiry.




Main activities summary

30 years as a mental health social work practitioner and MWO/ASW in Devon, N Wales and, from 1978, East Anglia - hospital based for Norfolk to 1985, community based for Suffolk to 1999 (with 2 year spell 1989 to 1991 as a freelance substance misuse counsellor mainly at the Roche Clinic, Southend and NORCAS in Lowestoft).

Special interest in supporting developments of service user and care involvement throughout (I have a long history of serious type II bipolar episodes).

I was an inaugural active member of the re-instituted British Association of Social; Workers’ (BASW) Mental Health Special Interest Group and, as social work representative at the Parliamentary launch, the whistleblowers’ organisation Freedom to Care in the early 1990s.

I Remained active throughout the 1990s and particular national work included: mental incapacity; eating disorders; defeating depression; support for those in difficulty; advice and representation; whistleblowing; and mental health law revision and reform. Shortlisted for the Mental Health Commission in mid 1990s and Parliamentary Officer for BASW in late 1990s.

I took early ill-health retirement in 1999 from full-time work with a local authority (via an Employment Tribunal disability discrimination action). Active in volunteer work since retirement, including mental health, whistleblowing and false allegations (of child abuse) advocacy; social work practice teaching; compiling and writing a small community newspaper (and developing advocacy reporting); researching service user and carer issues and the development of PPI; jazz education projects; and, as a former union steward and member of the Norfolk UNISON Retired Members Section, member representation at private sector disciplinary hearings. Latterly, I’ve been working with Norfolk LINk and have done some advocacy work for Age UK Norfolk.

Currently I spend much time discussing issues and networking on the internet. I wrote a Blog called PPlog (Patient and Public Log) and had a website www.ppeyes.org.uk, both now defunct - I used to work, mainly as a volunteer for the disability rights organisation Equal Lives (see below). but also have done some direct work work for LINKS in a Readers Panel and accepted a role of user representative on the PCT ‘Special Allocations Panel’ which deals with cases of users who have exhibited unreasonable/violent behaviour in an NHS setting. The latter finished with the LINKS demise.

I was involved in the work of the Norfolk Coalition of Disabled People (NCODP), now renamed Equal Lives, and we completed a six session training sequence which was part of a Joint Commissioning Strategy appointment of NCODP to monitor the Norfolk Personalisation Agenda (I questioned the exclusion of mental health from this). Nicely parallel to this was continuing consultation on building the local strategy for Personal Health Budgets with a tied in focus group. In November 2009 I was offered and enthusiastically accepted a place on the National Survivor User Network management committee. Unfortunately I had to quit in June of 2010 because my worsening mobility problem meant it became too difficult to travel to and across London.

Published Work:

  • Free Expression of Staff Concerns (whistleblowing) for BASW, 1993;
  • articles on whistleblowing issues for Community Care, Care Weekly and Professional Social Work in early/mid 1990s;
  • ‘Whistleblowing and training for accountability’ in ‘Whistleblowing in the Social Services’, ed. Geoff Hunt, Arnold 1998.
  • BASW Mental Health Special Interest Group’s response to the Reform of the Mental Health Act White Paper;
  • individual contribution to the Joint Committee on Human Rights report
  • ‘Draft Mental Health Bill’ (their appendix No. 10);
  • AAFAA report (presented as a witness) to the Nolan Committee inquiry into Child Abuse in the Catholic Church 2001;
  • individual contribution to the Home Affairs Select Committee on false allegations of child abuse;
  • various articles for the Beccles Community Newspaper, ‘The Essential Voice”;
  • ‘Access all Areas’ (PPI), in Care and Health Magazine 13 - 19 April, 2004.
  • ‘PPI = Patient and Public Impediment’ - various outlets April 2004.

I have no commercial or financial interests.

Current Circumstances

I have multiple physical disabilities: degenerate lumbar scoliosis with a trapped nerve; C.O.P.D.; essential tremors (a real curse); type 2 diabetes with peripheral neuropathy in my legs; osteo arthritis; single sided deafness with an open mastoid cavity; flawed eyesight from a growing cataract; lifelong cyclical depression. and a continuing legacy from an anterior colon resection. I am wheelchair bound for any distance other than a few yards and any activities lasting more than a few minutes and for the last couple of years have been an expert recluse in may own home.

Mike Llywelyn Cox. 25.08.2010.

Wednesday, 27 January 2021

Weekly Meeting People First.

People with learning disabilities – COVID-19 Support and Action Group

Wednesday 20th January 2021 1.

Present

Andrew Firielle Eve Kweku

Apologies

Kenneth

Joanne Jenny Gordon Vicky Peter Russell Kieran Linda Simone Christopher Philipa Sarah

John

2. Introductions

Joanne welcomed everyone to the meeting and asked how we were all feeling.

Generally people were ok but some of the group shared how difficult they were finding things at the moment.

Jenny, Linda, Russell and Kieran shared information about a meeting they went to about local cuts and a consultation process. We agreed to discuss it more.

1

 

3. Action agreed at the last meeting

1. Find out how we can be involved in the Mental Health Act Reform consultation.

Andrew & Sarah

2. Find out what scams are going around about Covid- 19 vaccinations

All

3. Invite Lisa Proctor to a meeting to discuss Peer Support in the NHS.

Philipa

3. Discussion

 

Jenny, Kieran, Russell and Linda spoke about the Wirral Council consultation and there concerns about a consultation starting just before Christmas and ending in January.

 https://www.wirralevolutions. org/news/wirral-council- budget-consultation

 Easy Read version

2

 

The deadline for people with a

disability, parents & carers has

been extended from 22nd to 29th

January 2021.

 

However, accessible information

about the consultation was not

available until it was asked for

half way through the consultation

period.

 

The group suggested writing a

joint letter to Wirral Council about

the lack of accessible information

and the short time-frame.

4. Next session: Svetlana Kotova

We had some discussion last week and some of the points people raised included:

  •   What are our rights to support during Covid-19 (How does the Covid-19 Act affect this?)

  •   How is reduced support affecting people’s ability to work and go out?

  •   The impact of loneliness and isolation

  •   Are care assessments happening? Can Las refuse

    to do them?

  •   IQ levels and thresholds to care 70/71

  •   Support plans for couples – boundaries of care

3

 

6. Action agreed

1. Draft a letter to Wirral Council about the consultation. Andrew & Sarah

2. Contact Anna Bowden at the Guardian about writing an article

Philipa

3. Invite Lisa Proctor to a meeting to discuss Peer Support in the NHS.

Philipa

 

5. Information exchange

National Lockdown Guidance

https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_ data/file/952298/National_Lockdown_Easy_Read.pdf https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_ data/file/952748/Clinically_Extremely_Vulnerable_Letter_Jan_National_Lockdown_Final.pdf easy read version: https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_ data/file/953423/cev-letter-easy-read_web-accessible_v3.pdf

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Research Warwick

Coronavirus and Learning Disability Study with Professors Richard Hastings and Chris Hatton, along with other researchers and organisations across the UK.

Here is the link to the study website: www.covid19learningdisabilities.co.uk and our project twitter page:

for information about the

study.

They are aiming to speak to 1000 people with learning disabilities across the UK by mid-February about their experiences during the COVID-19 pandemic.

They are keen to ensure that we are recruiting a representative sample of people from BAME communities.

The Clarity Project - Free legal sessions

Session 3: Lasting Power of Attorney and Deputyship Wednesday 13th January 2021 7.30pm-9.30pm

Coronavirus and Learning Disability Study

(@CoronavirusLD) / Twitter

Session 4: Listening Session

Tuesday 9th February

2021 7.30pm-9.30pm

5

Joint Voices sessions

Monday 8th February Monday 15th February Monday 8th March Monday 15th March Monday 12th April

10.00am - 12.00pm 10.00am - 12.00pm 10.00am - 12.00pm 10.00am - 12.00pm 10.00am - 12.00pm

Christopher’s artwork from the session

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Saturday, 23 January 2021

People First Notes 20/01/21

People with learning disabilities – COVID-19 Support and Action Group

Wednesday 13th January 2021 1. Present

Christopher Firielle Christine Kieran

Apologies

Andrew

2. Introductions

Joanne Russell Darren Kweku

Gordon

Jenny Eve Simone Philipa

Gary Peter Kenneth Sarah

Joanne welcomed everyone to the meeting and asked how we were all feeling.

There was a lot of energy in the group and there seemed to be a lot happening for people.

We were reminded that we were coming up to the group’s 1-year anniversary and agreed it would be a good time to review what we have done over the last year.

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3. Action agreed at the last meeting

1. Send names to Andrew if interested in joining the Joint Voices workshops

Eve, Olcay, Simone, Kweku, Kieran, Kenneth, Joanne, and Andrew attended the first session. The next session is Monday 8th February.

2. Contact Svetlana about attending the group in the New Year.

Svetlana will be attending the group Wednesday 27th January at 1pm

3. Contact journalists - Saba Salman & Ian Bridmor

Philipa will follow up the contacts

4. Follow up action agreed with Elizabeth

Eve has joined the case and will follow up any action and feedback with Elizabeth.

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4. Topic: Mental Health Act White Paper

Press release: Landmark reform of mental health laws https://www.gov.uk/government/ne ws/landmark-reform-of-mental- health-laws

We discussed the morning’s announcement about the Mental Health Act reform.

Today the Government published

its White Paper Reforming the

Mental Health Act

There will now be a consultation period until 21st April 2021 https://www.gov.uk/government/co nsultations/reforming-the-mental- health-act

We talked about how the reform of the Mental Health Act will impact people with a learning disability and autism.

The reform aims to ensure that a

people with learning disabilities or

autism are only sectioned if they

have a severe mental health

condition; not because of their

behaviour- 'abnormally aggressive

or seriously irresponsible'.

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5. Discussion: Vaccination

 

We discussed the priority list again and how people with learning disabilities/difficulties and autism should be prioritised within each level.

 

There’s a lot of scaremongering and scams about the vaccine. It’s very confusing and upsetting.

People are being asked for money to have vaccinations.

We agreed to find out more about the scams so we can share information about it.

 

Photosymbols have free Covid-19 posters on the Keep Safe website https://www.keepsafe.org.uk/

There’s lots of other accessible information about Covid-19 here https://www.keepsafe.org.uk/coron avirus-info-1

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6. Feedback from other meetings

Workforce Expert Advisory Group

Peter, Chris, Eve, Olcay and Kieran attended the last meeting. The main topic was about Peer Support.

Peter explained that the NHS is looking at employing people with learning disabilities and autism as Peer Support Workers to support other people with learning disabilities and autism.

Chris was a bit worried as he felt the language used was very medical. Peer support came out of user-led and community work.

Kieran and Eve spoke about equality issues around pay, roles and training. There’s a lot to think about.

Everyone agreed that it would be good to invite Lisa Proctor from Health Education England to come to the group.

Joint Voices

Kenneth, Joanne, Simone, Olcay, Andrew and Kieran attended the first session and said it went really well.

Joanne will be delivering a presentation about ATUs with one of the family members.

Kenneth said he learnt about Bethany’s story which was very distressing.

5

 

6. Action agreed

1. Find out how we can be involved in the Mental Health Act Reform consultation.

Andrew & Sarah

2. Find out what scams are going around about Covid- 19 vaccinations

All

3. Invite Lisa Proctor to a meeting to discuss Peer Support in the NHS.

Philipa

 

5. Information exchange

Joint Voices sessions

Monday 8th February Monday 15th February Monday 8th March Monday 15th March Monday 12th April

10.00am - 12.00pm 10.00am - 12.00pm 10.00am - 12.00pm 10.00am - 12.00pm 10.00am - 12.00pm

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The Clarity Project - Free legal sessions
Session 3: Lasting Power of Attorney and Deputyship

Wednesday 13th January 2021 7.30pm-9.30pm

The Joint Voices Project

Christopher’s artwork from the session

Session 4: Listening Session

Tuesday 9th February

2021 7.30pm-9.30pm

7

Ancestry

Children of Ann and John Jones   To show why so many of us in and around Llandudno are to some degree related to each other! This is jus...