Skip to main content

Posts

A Hospital Nightmare.

This comes with no apology for it being entirely personal.  On Tuesday last, I had to attend hospital for an assessment for a cataract operation - simple enough you might say. Fine, no problem with the assessment (or, normally, the operation). To get to the hospital, 13 miles away - there is no public transport from this small rural village my wife would have to take me and no way could she or I lift my wheelchair or scooter into her small car. So I contacted the hospital asking if wheelchairs are available there. Yes, no problem was the reply.  BUT! When we got there, the only wheelchairs are large ones that have to be pushed (no self-propelled chairs). And Kate struggled pushing one with lumpen me in it. She complained of a painful back afterwards.  Now the appointment letter told us the assessment was in Ophthalmology in the “Windsor Suite” but with no clue as to where the “Windsor Suite” is in the hospital. So I looked on the hospital website and it said Ophthalmology is just t
Recent posts

Shadow report UNCRPD

People First (Self Advocacy) 336 Brixton Road, London SW9 7AA Email: info@peoplefirstltd.com Website: www.peoplefirstltd.com This report is in three parts: Page 1: Page 9: Page 16: The workshop responses 10.11.21 Additional information from Simone Aspis Direct comments on the recommendations 1. The workshop responses 10.11.21 15 people attended We discussed all the issues and then agreed to do some follow up work to gather more information and evidence and examples to support our points. Generally people felt things have stayed the same since 2017, with not much improvement. Then Covid-19 highlighted (all at once) just how little the Government and some sections of society regarded the needs and rights of disabled people. People with learning disabilities felt scared, isolated, cut off and forgotten about. In some ways things had got worse for people. Since Covid-19 they felt scared, isolated and not valued, 1 especially as we heard more and more cases of people being given Do No

Post 26/11/21

People with learning disabilities – COVID-19 Support and Action Group Wednesday 17th November 2021 Time: 12:30pm-2:30pm https://us06web.zoom.us/j/97471173675 Meeting ID: 974 7117 3675 1. Present Andrew Joanne Ray Firielle Chris Eve Don Phil Jenny Charles Kweku Sarah Sam Geraldine Olcay 2. Introductions Joanne and Jenny welcomed everyone to the meeting and asked how they were feeling. We welcomed Don OCallaghan from the USA. Firielle told us about her dental treatment and meetings with her self-advocacy group. 1 Chris shared some information about some treatment he’s having on his feet and the Channel 4 documentary on Heidi’s court case. Charles said he has written to the BBC to talk about his experiences as someone with autism. They are calling for people’s stories. Kweku shared an update about the hosting of Waltham Forest People First. Eve said she’s feeling better and preparing for some important meetings. She also said that she found out that she had a Do Not Resuscitate (DNR)

People First

People with learning disabilities – COVID-19 Support and Action Group Wednesday 3rd November 2021 Time: 12:30pm-2:30pm https://us06web.zoom.us/j/97471173675 Meeting ID: 974 7117 3675 1. Present Andrew Olcay Kweku Apologies: Geraldine Peter Ray Christopher Jenny Kieran Philipa Charles Simone Firielle Sarah 2. Introductions Andrew welcomed everyone to the meeting and asked everyone how they were feeling. Andrew spoke about the People First newsletter and the sessions with self advocates in Nepal. 1 Jenny spoke about the new work Together All Are Able are starting with Wirral Evolutions and the Speak Up Be Heard meeting. Ray talked about his health issues and the group asked about what support he was getting or could get. Chris talked about some of the campaigns and debates he’s involved in, including Heidi’s court case. He is also being interviewed by Channel 4 and they will use his artwork. Firielle said she has just got out of hospital after dental surgery and has had her booster j

UNCRPD

Dear all On Wednesday 10th November 12:30 – 2:30 we are running a workshop on the UNCRPD Shadow reporting process. We will be asking the following questions. Here are the questions: 1. Whether things have got better or worse or stayed the same since the last examination in 2017 2. How far the Committee’s recommendations in 2017 and 2016 have been implemented 3. Whether any new issues have emerged since 2017 4. Which issues have had the biggest impacts on the most numbers of Deaf and Disabled people in England / have the most significant implications for the rights of Deaf and Disabled people in England Please find other information attached. Best wishes Andrew Lee People First (Self Advocacy) 336 Brixton Road, London. SW9 7AA Tel. 020 7274 5484 www.peoplefirstltd.com cid:image001.png@01D5746B.0BB85490

Covid19 Project

Long Covid Project People First (Self Advocacy) is one of six organisations working with National Voices on the Long Covid project. Our role is to make sure the experiences of people with learning difficulties, disabilities and autism are included in this work. The National Voices project purpose is to:  Support voluntary sector organisations work together to gather the experiences of the people they work with, and make a joint response about the challenges of Long Covid  Provide a voice for those facing exclusion from the health system. 1  Influence the work of NHS England and NHS Improvement We have been asked to run some Focus Groups in October and November with people with learning difficulties, learning disabilities and autism. We will also send a questionnaire to advocates and other people who work with people with learning difficulties, disabilities and autism. We want to hear from people who have had Covid-19 or someone close to them has had Covid-19. If you would l

People with learning disabilities – COVID-19 Support and Action Group Wednesday 29th September 2021

1. Present Andrew Kieran Philipa Apologies: Peter Sarah Simone Firielle Joanne Olcay Ray Charles Geraldine Jenny Gary 2. Introductions Andrew welcomed everyone to the meeting and asked everyone how they were feeling. Andrew reminded everyone that we use the same Zoom link every week. Time: 12:30pm-2:30pm https://us06web.zoom.us/j/97471173675 Meeting ID: 974 7117 3675 1 We all recognise that speaking up is important. The question is HOW. Where we do we start if we want people to come to us anytime they want to know what people with learning difficulties think? What are the steps? Simone: I think we need to have a real conversation about working from home and support. Andrew: Support is a category in itself Geraldine: What support are you thinking is needed Simone? Simone: Because I do paid and unpaid work, I’ve noticed as more people are working from home, it’s more difficult to get people to see beyond peoples 4 walls, and maybe we need more flexibility. It’s very hard not meeting u