PPlog

2. Introductions Jenny welcomed everyone to the meeting and asked how we were all feeling. Generally people were feeling ok but were finding the amount of Zoom meetings tiring. Andrew, Olcay, Joanne, Kieran, Chris and Eve attended The Clarity Project - Supporting Decision-Making second session about 1 Session 3 is about Lasting Power of Attorney and Deputyship - 13.01.2021 7:30pm – 9:30pm People who attended fed back to the rest of the group. Olcay spoke about her feelings about the use of the term ‘burden’ when speaking about people with learning difficulties. We then spoke about terminology such as, ‘ burden ’ , ‘ challenging behaviour ’ and ‘ vulnerable ’ .

On October 20th I wrote:  I have COPD and... some of it’s recommendations such as reviews at home using tools like ‘microspirometery’ are inaccessable for me because they rely on the patient having a smart phone. once again; I’m unable to use a smart phone as I have Essential Tremors - my fingers dance all over the place so tapping at any target is impossible! -  Yet another example of social discrimination. On Monday of this week beginning 30th November, ROFA, the Reclaiming Our Futures Alliance (an ironic title in this instance) announced their new project "Liberation" they said: " To get involved and to sign up to the campaign check out the dedicated page on the ROFA website:  https://www.rofa.org.uk/nilss_project/ " Eagerly I did as it said and - would you believe it! - to sign in to join 'LIberation' you have to go through a sequence using your smart mobile phone! They say, and this was checked today, 7th December: "We have asked people to answer t

Personal rambling All my life partners (all women) have, to one degree or another, said I am ‘difficult.’ and ‘obsessive.’ Neurodiverse? Maybe:   As a teenager I collected a label of ‘Moody’ from my girlfriends but that showed up later in life as a problem with a periodic cycle of depression. As far back as I can remember I carried painful anxiety; a tight wad of inexplicable fear - based on nothing I could think of, lodged just below my rib cage. I hefted this around in the background of everything I did until I was in my thirties when it disappeared for no tangible reason. But all my activities were still performed to a good, principled and sometimes high standard, despite my friend in the background.   I’ve never been able to make small talk and have always avoided situations like parties or social groups in the pub. I have though, throughout my working life, excelled at talking in groups on a specific subject; possibly for too long and loud, to my detriment. Always happy on my own,