Skip to main content

People First

People with learning disabilities – COVID-19 Support and Action Group

Wednesday 30th March 2022

Time: 12:30pm-2:30pm https://us06web.zoom.us/j/97471173675 Meeting ID: 974 7117 3675

1. Present

Andrew Sam Russell

Jenny Simone Kweku

Kieran Olcay Geraldine

Ray Charles Sarah

Guest: James Sanderson

Apologies:

Gary Peter Phil

Russell: Reallygood,I’m now Covid-19 free and feeling much better.

Jenny: Feelingok,busywith different things.

Sam: Alright and getting on with things

1

Simone: Up and down. Been busy with work.

Charles: Very happy and having a good time. The team that is supporting me is great.

Geraldine: It’s been really good. Charles is telling me when he doesn’t need me to be around.

Olcay: Feeling good, doing more and just attended a meeting.

Ray: Said he’s not too bad and he’s been out and about in the good weather – although now it’s cold again. He asked who watched the concert for Ukraine.

Kweku: Been busy with VoiceAbility

Kieran: FeelingOkand optimistic about getting the 3 monthly injections back on track.

Sarah: Feeling ok and happy to see everyone.

2

Things to do:

Andrew and Jenny went through the topics that people said they had wanted to talkjabout.

There are also a number of dates that need to be confirmed for guest speakers.

These include:

Ian McCreath to come back and ask the remaining questions from our list.

James Sanderson to come back and spend more time answering our questions.

Neil Crowther to come back and talk about Social Care Futures

Rosie and Sophie to come to the group to talk about attending meeting with the Law Society.

3

Other people suggested as guest include:

Alexis Quin Fion
Denis Queen

6th, 13th or 20th April were suggested for Rosie and Sophie

Kieran will contact Alexis

Andrew will contact Fion and Dennis.

Russell suggested inviting James back.

Jenny reminded people that Neil Crowther also offered to come back to talk about Social Care Futures.

Topic for today

Being safe and free testing.

Jenny read through the guidance that came out the day before.

4

We discussed some of the areas that weren’t clear.

Andrew said he would ask questions in the NHS Learning Disability webinar later.

Questions:

  •   Willpeopleinpriority level category 6 get free testing?

  •   Will people in day centres get free testing?

  •   Willpeoplewhohave free prescription because of a health condition get free testing?

  •   Willpeopleonbenefits get free testing?

  •   If you are eligible where do you get them from?

  •   How much will it cost?

    Simone said she doesn’t understand the testing mentality as you have to leave the house to get the tests.

    Kweku said it should be free for everyone.

5

Government Guidance published 29th March 2022

https://www.gov.uk/government/news/government- sets-out-next-steps-for-living-with-covid

Simone:

  •   The Government has published the Special Educational Needs and Disabilities (SEND) Green Paper

  •   The Down Syndrome Bill may become an Act by Friday.

  •   Heidi’s case is going to the Court of Appeal

    Chris:

Received an email about the Comic Strip he has designed for a Hospital Passport for Children. It is now being coloured

Next meeting:

Wednesday 6th April 2022 12:30pm - 2:30pm

https://us06web.zoom.us/j/97471173675

6

Chris’s Art Work

7


Comments

Post a Comment

Popular posts from this blog

SURVIVOR HISTORY NEWSLETTER

>From Andrew Roberts Secretary Survivors History Group http://studymore.org.uk/ studymore@studymore.org.uk telephone: 020 8 986 5251 home address: 177 Glenarm Road, London, E5 ONB Survivor History Group Summer 2012 Newsletter The July London meeting of the Survivors History Group will be held on Wednesday 25.7.2012 from 1pm to 5pm at Together, 12 Old Street, London. Everybody is welcome and refreshments will be provided. The September meeting has had to be moved from a Wednesday to Thursday 27.9.2012 (subject to approval by this Wednesday's meeting) because of the availability of a room at Together.   -------------------------------------------------------------------- The agenda for the July meeting will be drawn up at the beginning of the meeting, but it will include Peter Campbell's regular report back on the research he is leading on the history of Survivors Speak Out and discussion of material received from other people about Survivors Speak Out.  Rick Hennelly has se...
Post a Comment
Read more

The DLA and Workfare Scandals.

This ConDem Coalition is exploiting the apparent helplessness of disabled people by taking essential money away from them and forcing vulnerable people, for example, people with mental health difficulties. I remember, when I was a practising social worker, the horror experienced by service users when they received a letter summoning them to undergo a medical examination (25 miles away in Norwich). Some became absolutely terrified at the prospect and the stress of having to get to and face the appointment led to one or two relapses and hospital admissions. Against local authority policy, I always took them to the appointment, went in with them and supported them through the interview acting as advocate. The doctors at these reviews were employed by the Benefits Agency and usually retired from practice. They were also usually empathic with the service user and mostly helped to reduce the terror of the interview. The new 'Workfare' reviews which every DLA claimant will have to und...
2 comments
Read more

inappropriate!!!

I tried to respond to a Patient Citizen Exchange blog by Laura Greene today. I said: Hello Laura. Welcome - and my admiration? for you "single-handedly representing the entire health voluntary sector and 1000+ PCX membership..." My first question has to be: what is the composition of the Strategic Advisory Board? And my second question: what proportion of service users to professionals is there on that Board? There are indeed millions of impatient citizens out there. They are called Service Users (primarily because 'Patient" carries the labels 'One that has things done to her/him'; 'One that is subservient to the "We know what is best for you" approach'; 'One that is at the wrong end of an imbalance of power.' etc). The Americans prefer the term 'consumers', but whatever, we should avoid the term with the negative connotations. I was listening to the 5 Live debate this morning on the Strictly Come Dancing row about whether...
3 comments
Read more