Skip to main content

People First

People with learning disabilities – COVID-19 Support and Action Group

Wednesday 30th March 2022

Time: 12:30pm-2:30pm https://us06web.zoom.us/j/97471173675 Meeting ID: 974 7117 3675

1. Present

Andrew Sam Russell

Jenny Simone Kweku

Kieran Olcay Geraldine

Ray Charles Sarah

Guest: James Sanderson

Apologies:

Gary Peter Phil

Russell: Reallygood,I’m now Covid-19 free and feeling much better.

Jenny: Feelingok,busywith different things.

Sam: Alright and getting on with things

1

Simone: Up and down. Been busy with work.

Charles: Very happy and having a good time. The team that is supporting me is great.

Geraldine: It’s been really good. Charles is telling me when he doesn’t need me to be around.

Olcay: Feeling good, doing more and just attended a meeting.

Ray: Said he’s not too bad and he’s been out and about in the good weather – although now it’s cold again. He asked who watched the concert for Ukraine.

Kweku: Been busy with VoiceAbility

Kieran: FeelingOkand optimistic about getting the 3 monthly injections back on track.

Sarah: Feeling ok and happy to see everyone.

2

Things to do:

Andrew and Jenny went through the topics that people said they had wanted to talkjabout.

There are also a number of dates that need to be confirmed for guest speakers.

These include:

Ian McCreath to come back and ask the remaining questions from our list.

James Sanderson to come back and spend more time answering our questions.

Neil Crowther to come back and talk about Social Care Futures

Rosie and Sophie to come to the group to talk about attending meeting with the Law Society.

3

Other people suggested as guest include:

Alexis Quin Fion
Denis Queen

6th, 13th or 20th April were suggested for Rosie and Sophie

Kieran will contact Alexis

Andrew will contact Fion and Dennis.

Russell suggested inviting James back.

Jenny reminded people that Neil Crowther also offered to come back to talk about Social Care Futures.

Topic for today

Being safe and free testing.

Jenny read through the guidance that came out the day before.

4

We discussed some of the areas that weren’t clear.

Andrew said he would ask questions in the NHS Learning Disability webinar later.

Questions:

  •   Willpeopleinpriority level category 6 get free testing?

  •   Will people in day centres get free testing?

  •   Willpeoplewhohave free prescription because of a health condition get free testing?

  •   Willpeopleonbenefits get free testing?

  •   If you are eligible where do you get them from?

  •   How much will it cost?

    Simone said she doesn’t understand the testing mentality as you have to leave the house to get the tests.

    Kweku said it should be free for everyone.

5

Government Guidance published 29th March 2022

https://www.gov.uk/government/news/government- sets-out-next-steps-for-living-with-covid

Simone:

  •   The Government has published the Special Educational Needs and Disabilities (SEND) Green Paper

  •   The Down Syndrome Bill may become an Act by Friday.

  •   Heidi’s case is going to the Court of Appeal

    Chris:

Received an email about the Comic Strip he has designed for a Hospital Passport for Children. It is now being coloured

Next meeting:

Wednesday 6th April 2022 12:30pm - 2:30pm

https://us06web.zoom.us/j/97471173675

6

Chris’s Art Work

7


Comments

Post a Comment

Popular posts from this blog

website

Just a confirmation of the search for a website host and my website ppeyes will be back on line. The functions are the same - as an independent monitor of how patient and public involvement in health is working with the addition of looking at how LINks will be set up (if they indeed are set up at all). This blog will be used for comments on current activities and developments closely allied to the website. As soon as the site is up and running I'll provide a link. Activities have extended further since ppeyes was taken off line (because it was criticising a government department - more later) in September 2005. I'm now active in service user campaigning and, being a disabled National Health Service User myself, in disability rights.
Post a Comment
Read more

Appeal for Users' ATOS Stories

Mental Health Resistance Network: Judicial Review  Members of the Mental Health Resistance Network (MHRN) have been working with a solicitor towards making a claim for a Judicial Review of the Work Capability Assessment (WCA) which is the assessment used to determine whether we will be granted Employment Support Allowance or sent back to work (if there is any work to be found!). MHRN are just focussing on people who claim on mental health grounds.   MHRN are now at a critical stage in this process as they are very close to being able to make the claim for Judicial Review. However, before theycan do this, it would help if they could find stories that will show the court what sort of problems the WCA causes. So they are looking for people who have been through the process and would be able to tell us about their experience. If people wish, MHRN can present their cases anonymously when they use their evidence. Although it ...
Post a Comment
Read more

SURVIVOR HISTORY NEWSLETTER

>From Andrew Roberts Secretary Survivors History Group http://studymore.org.uk/ studymore@studymore.org.uk telephone: 020 8 986 5251 home address: 177 Glenarm Road, London, E5 ONB Survivor History Group Summer 2012 Newsletter The July London meeting of the Survivors History Group will be held on Wednesday 25.7.2012 from 1pm to 5pm at Together, 12 Old Street, London. Everybody is welcome and refreshments will be provided. The September meeting has had to be moved from a Wednesday to Thursday 27.9.2012 (subject to approval by this Wednesday's meeting) because of the availability of a room at Together.   -------------------------------------------------------------------- The agenda for the July meeting will be drawn up at the beginning of the meeting, but it will include Peter Campbell's regular report back on the research he is leading on the history of Survivors Speak Out and discussion of material received from other people about Survivors Speak Out.  Rick Hennelly has se...
Post a Comment
Read more