Long Covid Project
People First (Self Advocacy) is one of six organisations working with National Voices on the Long Covid project.
Our role is to make sure the experiences of people with learning difficulties, disabilities and autism are included in this work.
The National Voices project purpose is to:
Support voluntary sector organisations work together to gather the experiences of the people they work with, and make a joint response about the challenges of Long Covid
Provide a voice for those facing exclusion from the health system.
1
Influence the work of NHS England and NHS Improvement
We have been asked to run some Focus Groups in October and November with people with learning difficulties, learning disabilities and autism.
We will also send a questionnaire to advocates and other people who work with people with learning difficulties, disabilities and autism.
We want to hear from people who have had Covid-19 or someone close to them has had Covid-19.
If you would like to get involved or find out more about the project you can contact us by:
Sending an email to
info@peoplefirstltd.com
Calling Philipa 07912 091953
2
Just a confirmation of the search for a website host and my website ppeyes will be back on line. The functions are the same - as an independent monitor of how patient and public involvement in health is working with the addition of looking at how LINks will be set up (if they indeed are set up at all). This blog will be used for comments on current activities and developments closely allied to the website. As soon as the site is up and running I'll provide a link. Activities have extended further since ppeyes was taken off line (because it was criticising a government department - more later) in September 2005. I'm now active in service user campaigning and, being a disabled National Health Service User myself, in disability rights.
Comments