Skip to main content

Weekly Meeting People First.

People with learning disabilities – COVID-19 Support and Action Group

Wednesday 20th January 2021 1.

Present

Andrew Firielle Eve Kweku

Apologies

Kenneth

Joanne Jenny Gordon Vicky Peter Russell Kieran Linda Simone Christopher Philipa Sarah

John

2. Introductions

Joanne welcomed everyone to the meeting and asked how we were all feeling.

Generally people were ok but some of the group shared how difficult they were finding things at the moment.

Jenny, Linda, Russell and Kieran shared information about a meeting they went to about local cuts and a consultation process. We agreed to discuss it more.

1

 

3. Action agreed at the last meeting

1. Find out how we can be involved in the Mental Health Act Reform consultation.

Andrew & Sarah

2. Find out what scams are going around about Covid- 19 vaccinations

All

3. Invite Lisa Proctor to a meeting to discuss Peer Support in the NHS.

Philipa

3. Discussion

 

Jenny, Kieran, Russell and Linda spoke about the Wirral Council consultation and there concerns about a consultation starting just before Christmas and ending in January.

 https://www.wirralevolutions. org/news/wirral-council- budget-consultation

 Easy Read version

2

 

The deadline for people with a

disability, parents & carers has

been extended from 22nd to 29th

January 2021.
 

However, accessible information

about the consultation was not

available until it was asked for

half way through the consultation

period.
 

The group suggested writing a

joint letter to Wirral Council about

the lack of accessible information

and the short time-frame.

4. Next session: Svetlana Kotova

We had some discussion last week and some of the points people raised included:

  •   What are our rights to support during Covid-19 (How does the Covid-19 Act affect this?)

  •   How is reduced support affecting people’s ability to work and go out?

  •   The impact of loneliness and isolation

  •   Are care assessments happening? Can Las refuse

    to do them?

  •   IQ levels and thresholds to care 70/71

  •   Support plans for couples – boundaries of care

3

 

6. Action agreed

1. Draft a letter to Wirral Council about the consultation. Andrew & Sarah

2. Contact Anna Bowden at the Guardian about writing an article

Philipa

3. Invite Lisa Proctor to a meeting to discuss Peer Support in the NHS.

Philipa
 

5. Information exchange

National Lockdown Guidance

https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_ data/file/952298/National_Lockdown_Easy_Read.pdf https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_ data/file/952748/Clinically_Extremely_Vulnerable_Letter_Jan_National_Lockdown_Final.pdf easy read version: https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_ data/file/953423/cev-letter-easy-read_web-accessible_v3.pdf

4

Research Warwick

Coronavirus and Learning Disability Study with Professors Richard Hastings and Chris Hatton, along with other researchers and organisations across the UK.

Here is the link to the study website: www.covid19learningdisabilities.co.uk and our project twitter page:

for information about the

study.

They are aiming to speak to 1000 people with learning disabilities across the UK by mid-February about their experiences during the COVID-19 pandemic.

They are keen to ensure that we are recruiting a representative sample of people from BAME communities.

The Clarity Project - Free legal sessions

Session 3: Lasting Power of Attorney and Deputyship Wednesday 13th January 2021 7.30pm-9.30pm

Coronavirus and Learning Disability Study

(@CoronavirusLD) / Twitter

Session 4: Listening Session

Tuesday 9th February

2021 7.30pm-9.30pm

5

Joint Voices sessions

Monday 8th February Monday 15th February Monday 8th March Monday 15th March Monday 12th April

10.00am - 12.00pm 10.00am - 12.00pm 10.00am - 12.00pm 10.00am - 12.00pm 10.00am - 12.00pm

Christopher’s artwork from the session

6

Comments

Post a Comment

Popular posts from this blog

SURVIVOR HISTORY NEWSLETTER

>From Andrew Roberts Secretary Survivors History Group http://studymore.org.uk/ studymore@studymore.org.uk telephone: 020 8 986 5251 home address: 177 Glenarm Road, London, E5 ONB Survivor History Group Summer 2012 Newsletter The July London meeting of the Survivors History Group will be held on Wednesday 25.7.2012 from 1pm to 5pm at Together, 12 Old Street, London. Everybody is welcome and refreshments will be provided. The September meeting has had to be moved from a Wednesday to Thursday 27.9.2012 (subject to approval by this Wednesday's meeting) because of the availability of a room at Together.   -------------------------------------------------------------------- The agenda for the July meeting will be drawn up at the beginning of the meeting, but it will include Peter Campbell's regular report back on the research he is leading on the history of Survivors Speak Out and discussion of material received from other people about Survivors Speak Out.  Rick Hennelly has sen
Post a Comment
Read more
Self Advocate’s Support and Action Group Wednesday 08 February 2023 Time: 12:30pm-2:30pm https://us06web.zoom.us/j/97471173675 Meeting ID: 974 7117 3675 1. Present Andrew Ray Olcay Russell Phil Sarah 2. Apologies: Jenny Firielle Chris Peter Vicky Andrew welcomed everyone to the meeting. Our last meeting was 8th February. 3. Check-in Andrew asked how everyone was feeling. Everyone shared how they were feeling and their news. 1 Firielle: told us about her acting work. She finished her tour with the play Milk and is now doing a performance with Dark Horse. They are currently touring. Russell: said he had just been to a face-to-face speaking up meeting, which was really good. He also told us that Joanne won the Derek Russell Award for Outstanding Leadership at the North West Self |Advocate’s conference. Peter: said he has been well. He told us about some of the jokes and play on words that he works on. He shared some that he had worked on earlier. Ray: said he has h
Post a Comment
Read more

inappropriate!!!

I tried to respond to a Patient Citizen Exchange blog by Laura Greene today. I said: Hello Laura. Welcome - and my admiration? for you "single-handedly representing the entire health voluntary sector and 1000+ PCX membership..." My first question has to be: what is the composition of the Strategic Advisory Board? And my second question: what proportion of service users to professionals is there on that Board? There are indeed millions of impatient citizens out there. They are called Service Users (primarily because 'Patient" carries the labels 'One that has things done to her/him'; 'One that is subservient to the "We know what is best for you" approach'; 'One that is at the wrong end of an imbalance of power.' etc). The Americans prefer the term 'consumers', but whatever, we should avoid the term with the negative connotations. I was listening to the 5 Live debate this morning on the Strictly Come Dancing row about whether
3 comments
Read more