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Weekly Meeting People First.

People with learning disabilities – COVID-19 Support and Action Group

Wednesday 20th January 2021 1.

Present

Andrew Firielle Eve Kweku

Apologies

Kenneth

Joanne Jenny Gordon Vicky Peter Russell Kieran Linda Simone Christopher Philipa Sarah

John

2. Introductions

Joanne welcomed everyone to the meeting and asked how we were all feeling.

Generally people were ok but some of the group shared how difficult they were finding things at the moment.

Jenny, Linda, Russell and Kieran shared information about a meeting they went to about local cuts and a consultation process. We agreed to discuss it more.

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3. Action agreed at the last meeting

1. Find out how we can be involved in the Mental Health Act Reform consultation.

Andrew & Sarah

2. Find out what scams are going around about Covid- 19 vaccinations

All

3. Invite Lisa Proctor to a meeting to discuss Peer Support in the NHS.

Philipa

3. Discussion

 

Jenny, Kieran, Russell and Linda spoke about the Wirral Council consultation and there concerns about a consultation starting just before Christmas and ending in January.

 https://www.wirralevolutions. org/news/wirral-council- budget-consultation

 Easy Read version

2

 

The deadline for people with a

disability, parents & carers has

been extended from 22nd to 29th

January 2021.
 

However, accessible information

about the consultation was not

available until it was asked for

half way through the consultation

period.
 

The group suggested writing a

joint letter to Wirral Council about

the lack of accessible information

and the short time-frame.

4. Next session: Svetlana Kotova

We had some discussion last week and some of the points people raised included:

  •   What are our rights to support during Covid-19 (How does the Covid-19 Act affect this?)

  •   How is reduced support affecting people’s ability to work and go out?

  •   The impact of loneliness and isolation

  •   Are care assessments happening? Can Las refuse

    to do them?

  •   IQ levels and thresholds to care 70/71

  •   Support plans for couples – boundaries of care

3

 

6. Action agreed

1. Draft a letter to Wirral Council about the consultation. Andrew & Sarah

2. Contact Anna Bowden at the Guardian about writing an article

Philipa

3. Invite Lisa Proctor to a meeting to discuss Peer Support in the NHS.

Philipa
 

5. Information exchange

National Lockdown Guidance

https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_ data/file/952298/National_Lockdown_Easy_Read.pdf https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_ data/file/952748/Clinically_Extremely_Vulnerable_Letter_Jan_National_Lockdown_Final.pdf easy read version: https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_ data/file/953423/cev-letter-easy-read_web-accessible_v3.pdf

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Research Warwick

Coronavirus and Learning Disability Study with Professors Richard Hastings and Chris Hatton, along with other researchers and organisations across the UK.

Here is the link to the study website: www.covid19learningdisabilities.co.uk and our project twitter page:

for information about the

study.

They are aiming to speak to 1000 people with learning disabilities across the UK by mid-February about their experiences during the COVID-19 pandemic.

They are keen to ensure that we are recruiting a representative sample of people from BAME communities.

The Clarity Project - Free legal sessions

Session 3: Lasting Power of Attorney and Deputyship Wednesday 13th January 2021 7.30pm-9.30pm

Coronavirus and Learning Disability Study

(@CoronavirusLD) / Twitter

Session 4: Listening Session

Tuesday 9th February

2021 7.30pm-9.30pm

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Joint Voices sessions

Monday 8th February Monday 15th February Monday 8th March Monday 15th March Monday 12th April

10.00am - 12.00pm 10.00am - 12.00pm 10.00am - 12.00pm 10.00am - 12.00pm 10.00am - 12.00pm

Christopher’s artwork from the session

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