Skip to main content

The Value of Peer Support.

“I can’t watch anymore of this.”
I said, hauling myself out of my chair and stumbling out of our living room - very low in mood and close to tears.

Kathy had chosen the documentary TV programme based in Guy’s Hospital and what they were showing was harrowing in the extreme.

“Why the hell do people want to watch something like this - is this entertainment? Is it in the interests of ‘the people’ it should be shown?” Have we turned into a society of ghouls?
I thought to myself, sitting glowering in our conservatory.

A young girl, 7 - 8 years old or younger. was shown having most of a growth removed from her brain. She, bemused, and her anguished parents were interviewed a week later by a consultant and told it was cancer - cancer of the most aggressive kind and they would have to start an aggressive treatment of chemotherapy and radiotherapy called the Milan therapy. Mostly unaware of her fate, this poor little girl would be having to go through not only the usual abuse of the body and the pain these treatments imposed but a much concentrated form too. Already in torment the anxious father asked what the record of this treatment is.

The parents were told in one study 17% success; in another study 15% success. It was at this point I left the room.

“Why the hell do people want to watch something like this - is this entertainment? Is it in the interests of ‘the people’ it should be shown? Have we turned into a society of ghouls? Is this the state of our human compassion? Are we now so blunted we enjoy misfortune so much? Do I want to be a member of this human race any longer?”

I became overwhelmed, saturated in misery.

Then, a little later on I thought about the other side of this human race: my friends, colleagues and peers in NCODP - those lovely people I often look forward to being with and working with and the individual positive projects we are all involved with - with loads and loads of compassion, cheeriness and affection.

And this - emotional peer support at a distance brought me out of the negative.

And I thought this real, small account of how peer to peer support can work worth recording!

Heddwch.

Mike.

N.B. Kathy told me afterwards the girl was doing well at the end of the programme.

Comments

Popular posts from this blog

website

Just a confirmation of the search for a website host and my website ppeyes will be back on line. The functions are the same - as an independent monitor of how patient and public involvement in health is working with the addition of looking at how LINks will be set up (if they indeed are set up at all). This blog will be used for comments on current activities and developments closely allied to the website. As soon as the site is up and running I'll provide a link. Activities have extended further since ppeyes was taken off line (because it was criticising a government department - more later) in September 2005. I'm now active in service user campaigning and, being a disabled National Health Service User myself, in disability rights.

Appeal for Users' ATOS Stories

Mental Health Resistance Network: Judicial Review  Members of the Mental Health Resistance Network (MHRN) have been working with a solicitor towards making a claim for a Judicial Review of the Work Capability Assessment (WCA) which is the assessment used to determine whether we will be granted Employment Support Allowance or sent back to work (if there is any work to be found!). MHRN are just focussing on people who claim on mental health grounds.   MHRN are now at a critical stage in this process as they are very close to being able to make the claim for Judicial Review. However, before theycan do this, it would help if they could find stories that will show the court what sort of problems the WCA causes. So they are looking for people who have been through the process and would be able to tell us about their experience. If people wish, MHRN can present their cases anonymously when they use their evidence. Although it ...

SURVIVOR HISTORY NEWSLETTER

>From Andrew Roberts Secretary Survivors History Group http://studymore.org.uk/ studymore@studymore.org.uk telephone: 020 8 986 5251 home address: 177 Glenarm Road, London, E5 ONB Survivor History Group Summer 2012 Newsletter The July London meeting of the Survivors History Group will be held on Wednesday 25.7.2012 from 1pm to 5pm at Together, 12 Old Street, London. Everybody is welcome and refreshments will be provided. The September meeting has had to be moved from a Wednesday to Thursday 27.9.2012 (subject to approval by this Wednesday's meeting) because of the availability of a room at Together.   -------------------------------------------------------------------- The agenda for the July meeting will be drawn up at the beginning of the meeting, but it will include Peter Campbell's regular report back on the research he is leading on the history of Survivors Speak Out and discussion of material received from other people about Survivors Speak Out.  Rick Hennelly has se...