Skip to main content

...look at Mother Nature on the run in the 21st century.

I have just read 'Rethinking Disability Policy' by Jenny Morris, a research paper published by the Joseph Rowntree Foundation and available here:


While I have long admired Jenny Morris and to a good extent have held her up as one of my heros, I'm a little disappointed in this paper. The words suck, eggs and teach come to mind. However, I must say it is a useful codification of how the present political dilemmas undermine disability rights and although she doesn't mention Tory ideology she tacitly refers to its destructiveness. BUT, most disabled people active in service user involvement today would be able to come up with more possible creative solutions – and perhaps more radical than Jenny's.

I think too, she is mistaken about how disabled activists are duped. Just one example encompasses 'personalisation' and 'co-production:'

Our expert user and carer group on 'Personalisation' is well aware of the misuse and misapplications the Department of Health and Norfolk County Council make of the principle and we make sure we lead on continually pointing out these aberrations while reinforcing the positive and accurate application of 'Personalisation' in our teaching sessions for health and local authority staff.

Co-production is naturally integral to the above activities. One of the enduring misapplications, particularly by the local authority, is that of the 'co' of the 'production' being presented as a 'uni' handed down policy to be just commented on by us. It is fast becoming standard practice to expect this and to stop it in its tracks by insisting that we work co-operatively on the original before we go any further. Facilitating meetings can be an expensive process and this kind of hiccup can make local government officers think twice about attempting to manipulate the process. I know of one occasion where a referral back to the originating committee was necessary. These are powerful messages that disabled people are no mugs.

I obviously agree that the survival and continuation of the full Welfare State must be promoted but we have (as just one facebook network confirms) more than enough creative thinkers and political activists to do this. What is missing is co-production to speak with one voice.   

Comments

Popular posts from this blog

website

Just a confirmation of the search for a website host and my website ppeyes will be back on line. The functions are the same - as an independent monitor of how patient and public involvement in health is working with the addition of looking at how LINks will be set up (if they indeed are set up at all). This blog will be used for comments on current activities and developments closely allied to the website. As soon as the site is up and running I'll provide a link. Activities have extended further since ppeyes was taken off line (because it was criticising a government department - more later) in September 2005. I'm now active in service user campaigning and, being a disabled National Health Service User myself, in disability rights.

Appeal for Users' ATOS Stories

Mental Health Resistance Network: Judicial Review  Members of the Mental Health Resistance Network (MHRN) have been working with a solicitor towards making a claim for a Judicial Review of the Work Capability Assessment (WCA) which is the assessment used to determine whether we will be granted Employment Support Allowance or sent back to work (if there is any work to be found!). MHRN are just focussing on people who claim on mental health grounds.   MHRN are now at a critical stage in this process as they are very close to being able to make the claim for Judicial Review. However, before theycan do this, it would help if they could find stories that will show the court what sort of problems the WCA causes. So they are looking for people who have been through the process and would be able to tell us about their experience. If people wish, MHRN can present their cases anonymously when they use their evidence. Although it ...

SURVIVOR HISTORY NEWSLETTER

>From Andrew Roberts Secretary Survivors History Group http://studymore.org.uk/ studymore@studymore.org.uk telephone: 020 8 986 5251 home address: 177 Glenarm Road, London, E5 ONB Survivor History Group Summer 2012 Newsletter The July London meeting of the Survivors History Group will be held on Wednesday 25.7.2012 from 1pm to 5pm at Together, 12 Old Street, London. Everybody is welcome and refreshments will be provided. The September meeting has had to be moved from a Wednesday to Thursday 27.9.2012 (subject to approval by this Wednesday's meeting) because of the availability of a room at Together.   -------------------------------------------------------------------- The agenda for the July meeting will be drawn up at the beginning of the meeting, but it will include Peter Campbell's regular report back on the research he is leading on the history of Survivors Speak Out and discussion of material received from other people about Survivors Speak Out.  Rick Hennelly has se...