Skip to main content

"Keys to Power - Service Users Take the Lead"

I've always had a little quirk. The first time I saw the road sign "Ramp Ahead" my first thought was 'How do I ramp ahead?' Good verb though - I can see the instructor: "Right lads, get it right this time. Steady now - get prepared.....and.....RAMP."

So it came to pass that when I saw the title of our Manchester conference I immediately thought it was an Alexander Armstrong catch-phrase resulting in the Sun headline: "Shoot All Service Users."

Ironically, the use of understandable and unambiguous words and language was a consistent topic at the seminar. Ah well! All in the/my mind perhaps!

But the seminar was a terrific success. People, a majority of mental health service users, from:

Birmingham
Manchester
Oldham
Berkshire
Leeds
London
Anglesey
Norfolk
Durham
Sandwell
Merseyside
Cumbria
Stoke on Trent
Bromley

All warmly talking to each other, learning from each other, making links with each other, sharing experiences with each other. Organisations and groups:

Golden Gates Housing
Kuumba Foundation
Kindness in Mind (KIM)
Ubuntu GroupLocal Mind organisations
Canvas
Alpha Hosp[itals
Presbyterian Church in Ireland
HARP
STUFF
NSUN
Leeds Survivor-led Crisis Service
Changes from Stoke on Trent
NHS North West

Trading information with each other, proudly headlining their achievements, demonstrating visible and powerful evidence that Survivors/Users can make a huge difference for wellbeing - and gathering growing confidence and collective authority in the process.

There was so much to learn from each other:

The Leeds Dial House, a sanctuary/asylum house for crisis intervention which was celebrating its tenth anniversary the day after the Seminar. An award winning facility entirely run by users and survivors, successfully providing a real alternative to compulsory admission and defaulting in specialising with attempted suicide and self-harm. Respected and well used by mental health professionals and living proof that users and survivors can provide real and effective peer to peer services.

An introduction to Catch-a-Fiya by Patricia Chambers. Catch-a-Fiya is an organisation supporting black users and survivors and their office is NSUN's base, so we have warm extended team relationships with them. We were entertained by Patricia's 13 year survivor history of peer to peer support, especially that which took place in hospital.

Bromley MIND which runs user led open access day centres and the community hearing voices group. We has a great interactive session with them.

Barbara Wain who after stabilising her severe bi-polar condition in 1988, with a friend set up the informal support network which developed into the facility challenging the medical model, "Changes." in Stoke on Trent. User to user help and support which has now developed into a multi award winning service with several branches which has 31 service users in full employment there.

An educative session by Carey Bamber from NHS North West outlining the history and up-to-date development of the Personalisation Agenda.

And, not least, Tina Coldham, our Chair updated everyone on current developments in NSUN - the North East networks, the Canterbury project for Kent Networks and the introduction of Carolyn Anderson from Kent and myself from Norfolk as new members of the management committee. Most importantly for me, Tina announced the advent in the new year of complete independence for NSUN as a charity in its own right (the hosting by Together has always been a matter of discord by some service users/survivors but in reality NSUN has always been independent). Our independence will also be celebrated with a redesigned website.

All in all a wonderful collective experience with, as far as I could see, everyone leaving feeling good and fired up.

Just one semantic niggle for me though: glancing back at the beginning, I also have some discomfort with the word "power" in this context and maybe 'Keys to Empowerment' would have been better - but that's food for another posting.

Mike.

Comments

Popular posts from this blog

SURVIVOR HISTORY NEWSLETTER

>From Andrew Roberts Secretary Survivors History Group http://studymore.org.uk/ studymore@studymore.org.uk telephone: 020 8 986 5251 home address: 177 Glenarm Road, London, E5 ONB Survivor History Group Summer 2012 Newsletter The July London meeting of the Survivors History Group will be held on Wednesday 25.7.2012 from 1pm to 5pm at Together, 12 Old Street, London. Everybody is welcome and refreshments will be provided. The September meeting has had to be moved from a Wednesday to Thursday 27.9.2012 (subject to approval by this Wednesday's meeting) because of the availability of a room at Together.   -------------------------------------------------------------------- The agenda for the July meeting will be drawn up at the beginning of the meeting, but it will include Peter Campbell's regular report back on the research he is leading on the history of Survivors Speak Out and discussion of material received from other people about Survivors Speak Out.  Rick Hennelly has se...

The DLA and Workfare Scandals.

This ConDem Coalition is exploiting the apparent helplessness of disabled people by taking essential money away from them and forcing vulnerable people, for example, people with mental health difficulties. I remember, when I was a practising social worker, the horror experienced by service users when they received a letter summoning them to undergo a medical examination (25 miles away in Norwich). Some became absolutely terrified at the prospect and the stress of having to get to and face the appointment led to one or two relapses and hospital admissions. Against local authority policy, I always took them to the appointment, went in with them and supported them through the interview acting as advocate. The doctors at these reviews were employed by the Benefits Agency and usually retired from practice. They were also usually empathic with the service user and mostly helped to reduce the terror of the interview. The new 'Workfare' reviews which every DLA claimant will have to und...

inappropriate!!!

I tried to respond to a Patient Citizen Exchange blog by Laura Greene today. I said: Hello Laura. Welcome - and my admiration? for you "single-handedly representing the entire health voluntary sector and 1000+ PCX membership..." My first question has to be: what is the composition of the Strategic Advisory Board? And my second question: what proportion of service users to professionals is there on that Board? There are indeed millions of impatient citizens out there. They are called Service Users (primarily because 'Patient" carries the labels 'One that has things done to her/him'; 'One that is subservient to the "We know what is best for you" approach'; 'One that is at the wrong end of an imbalance of power.' etc). The Americans prefer the term 'consumers', but whatever, we should avoid the term with the negative connotations. I was listening to the 5 Live debate this morning on the Strictly Come Dancing row about whether...