Skip to main content

Too Early, Too Far - again!

Norfolk LINk has announced it is to launch its new website this coming Thursday 14th. At the same time there is to be a “Public Meeting” to celebrate the 1st anniversary of the LINk on that day “...a chance to meet the newly elected members” they say.

Sick joke! For members of the public to attend that meeting from here they would have to travel in a good car for more than an hour to reach Swaffham which is about 60 miles away. And it is more for other ordinary people (the “public”) from Norfolk.

This effectively means this forthcoming meeting in Swaffham socially excludes and discriminates against disabled people.

The government paper “Planning your Local Involvement Network” said:

3.0 The primary role of a LINk is to provide a stronger voice for local people in the planning, design or redesign, commissioning, and provision of health and social care services.

3.1 Although LINks have flexibility about how they undertake their roles, there are a number of principles that should be common to all. These include: being accessible to all, including those with full-time jobs, those who feel excluded and those who might need support to participate

What generates pained laughter about Norfolk LINk is that the “public” label attached to this Swaffam meeting is empty - all this meeting can be is a cosy gathering of the Norfolk LINk Star Chamber with what ‘members’ remain - paid for by the scarce funds of the Host - money that could have been better used to reach out to service users, carers and the genuine public across Norfolk AS IS SUPPOSED TO BE THEIR FIRST PRIORITY.

In stark contrast I came across another good example (see my entry for 13th April below) of how it should be done today: At the side of the entrance to Beccles Tesco’s was an attractive and colourfully presented small (12ft x 12ft) marquee (which would not be expensive to buy) promoting World Breastfeeding Week. I asked the three personable people staffing the marquee if getting permission to set it up there had been difficult. “We just came here and asked inside and there was no hesitation.” They said.

Shame on this Norfolk LINk which is fast becoming more and more inward looking and self-congratulatory.

Comments

Popular posts from this blog

SURVIVOR HISTORY NEWSLETTER

>From Andrew Roberts Secretary Survivors History Group http://studymore.org.uk/ studymore@studymore.org.uk telephone: 020 8 986 5251 home address: 177 Glenarm Road, London, E5 ONB Survivor History Group Summer 2012 Newsletter The July London meeting of the Survivors History Group will be held on Wednesday 25.7.2012 from 1pm to 5pm at Together, 12 Old Street, London. Everybody is welcome and refreshments will be provided. The September meeting has had to be moved from a Wednesday to Thursday 27.9.2012 (subject to approval by this Wednesday's meeting) because of the availability of a room at Together.   -------------------------------------------------------------------- The agenda for the July meeting will be drawn up at the beginning of the meeting, but it will include Peter Campbell's regular report back on the research he is leading on the history of Survivors Speak Out and discussion of material received from other people about Survivors Speak Out.  Rick Hennelly has sen
Self Advocate’s Support and Action Group Wednesday 08 February 2023 Time: 12:30pm-2:30pm https://us06web.zoom.us/j/97471173675 Meeting ID: 974 7117 3675 1. Present Andrew Ray Olcay Russell Phil Sarah 2. Apologies: Jenny Firielle Chris Peter Vicky Andrew welcomed everyone to the meeting. Our last meeting was 8th February. 3. Check-in Andrew asked how everyone was feeling. Everyone shared how they were feeling and their news. 1 Firielle: told us about her acting work. She finished her tour with the play Milk and is now doing a performance with Dark Horse. They are currently touring. Russell: said he had just been to a face-to-face speaking up meeting, which was really good. He also told us that Joanne won the Derek Russell Award for Outstanding Leadership at the North West Self |Advocate’s conference. Peter: said he has been well. He told us about some of the jokes and play on words that he works on. He shared some that he had worked on earlier. Ray: said he has h

inappropriate!!!

I tried to respond to a Patient Citizen Exchange blog by Laura Greene today. I said: Hello Laura. Welcome - and my admiration? for you "single-handedly representing the entire health voluntary sector and 1000+ PCX membership..." My first question has to be: what is the composition of the Strategic Advisory Board? And my second question: what proportion of service users to professionals is there on that Board? There are indeed millions of impatient citizens out there. They are called Service Users (primarily because 'Patient" carries the labels 'One that has things done to her/him'; 'One that is subservient to the "We know what is best for you" approach'; 'One that is at the wrong end of an imbalance of power.' etc). The Americans prefer the term 'consumers', but whatever, we should avoid the term with the negative connotations. I was listening to the 5 Live debate this morning on the Strictly Come Dancing row about whether