Skip to main content

Government Consultation

In an interesting exercise which looks like more empty propaganda (and I'm foolishly optimistic enough to hope it isn't), the Government have set up a website inviting comments from the great washed public. click on the title of this pplog to get there. Today, I wrote:

In 2002, as part of the consultations for removing Community Health Councils in England and putting Patient and Public Involvement Forums in their place, the DoH commissioned a consultation report by the Patient's Forum. That report (by Christine Hogg and Lindsey Graham - still available at http://www.thepatientsforum.org.uk/PPIPscopingstudyfinalreport1.asp), involving a host of patients' organisations, was vitually ignored. The Government then established in 2003 the Quango, the Commission for Patient and Public Involvement in Health. CPPIH went on to do its own thing totally ignoring 30 years' knowledge, expertise and experience of service user organisations. That is chronicled on www.ppeyes.org.uk (mainly now in the Archives). In Autumn 2005 CPPIH had ppeyes closed down by getting their solicitors to write to the website host claiming defamation. The host acted without checking if it was defamatory (it can't be defamatory if it is fact - see the Dossier in Archives. Consultation!!


Shackled by a 1000 character limit, I was going on to say:

The same sort of disregard is happening now. PPI Forums, via their National Association, having largely found their own feet in their three years' existence - in spite of being hampered by CPPIH - are now lobbying the Lords which will be hearing the final stages of the Local Government and Public Involvement in Health Bill when Parliament re-convenes. They are united in saying this Bill should not abolish PPI Forums (which the Government promised it would not do only 18 months ago) to establish new structures called LINks, but build LINks on and around the attainments of PPI Forums. And that is being ignored too.

So too are the findings of the Parliamentary Health Committee's Inquiry into PPI published earlier this year.

Maybe I should attend further education classes to learn to become a full-blooded pessimist!!

Comments

Popular posts from this blog

The DLA and Workfare Scandals.

This ConDem Coalition is exploiting the apparent helplessness of disabled people by taking essential money away from them and forcing vulnerable people, for example, people with mental health difficulties. I remember, when I was a practising social worker, the horror experienced by service users when they received a letter summoning them to undergo a medical examination (25 miles away in Norwich). Some became absolutely terrified at the prospect and the stress of having to get to and face the appointment led to one or two relapses and hospital admissions. Against local authority policy, I always took them to the appointment, went in with them and supported them through the interview acting as advocate. The doctors at these reviews were employed by the Benefits Agency and usually retired from practice. They were also usually empathic with the service user and mostly helped to reduce the terror of the interview. The new 'Workfare' reviews which every DLA claimant will have to und...

SURVIVOR HISTORY NEWSLETTER

>From Andrew Roberts Secretary Survivors History Group http://studymore.org.uk/ studymore@studymore.org.uk telephone: 020 8 986 5251 home address: 177 Glenarm Road, London, E5 ONB Survivor History Group Summer 2012 Newsletter The July London meeting of the Survivors History Group will be held on Wednesday 25.7.2012 from 1pm to 5pm at Together, 12 Old Street, London. Everybody is welcome and refreshments will be provided. The September meeting has had to be moved from a Wednesday to Thursday 27.9.2012 (subject to approval by this Wednesday's meeting) because of the availability of a room at Together.   -------------------------------------------------------------------- The agenda for the July meeting will be drawn up at the beginning of the meeting, but it will include Peter Campbell's regular report back on the research he is leading on the history of Survivors Speak Out and discussion of material received from other people about Survivors Speak Out.  Rick Hennelly has se...
Self Advocate’s Support and Action Group Wednesday 08 February 2023 Time: 12:30pm-2:30pm https://us06web.zoom.us/j/97471173675 Meeting ID: 974 7117 3675 1. Present Andrew Ray Olcay Russell Phil Sarah 2. Apologies: Jenny Firielle Chris Peter Vicky Andrew welcomed everyone to the meeting. Our last meeting was 8th February. 3. Check-in Andrew asked how everyone was feeling. Everyone shared how they were feeling and their news. 1 Firielle: told us about her acting work. She finished her tour with the play Milk and is now doing a performance with Dark Horse. They are currently touring. Russell: said he had just been to a face-to-face speaking up meeting, which was really good. He also told us that Joanne won the Derek Russell Award for Outstanding Leadership at the North West Self |Advocate’s conference. Peter: said he has been well. He told us about some of the jokes and play on words that he works on. He shared some that he had worked on earlier. Ray: said he has h...