Skip to main content

PPI Independence

I sent this mail today to the Norfolk Forum Support Organisation:

Hello Stephen.

I’m writing about some disquiet I am feeling around the Norfolk PCT PPI
Forum and I’m writing to you first in the hope of clearing it up quickly. This is however, copied to PPlog.

Since May I’ve been absorbed by disability rights issues and getting ppeyes back on line. In the latter process which entailed reviewing everything previous, I was reminded of the issue around the original Waveney PPI Forum and my formal complaint to CPPIH about that which eventually went to the Parliamentary Ombudsman. The Ombusdsman eventually declined the complaint on the grounds it was a ‘personnel matter’ but before that they had begun investigations and CPPIH confessed their mistake. You May have had some knowledge of the issue. It is on ppeyes anyway.

The complaint was that the chair of Waveney PPI was also a non-executive director of one of the trusts involved and should not have been appointed to the Forum in the first place.

Independence is one of the overarching principles of PPI. And the regulations attempt to secure this principle.

Statutory Instrument 2003 No. 2123, The Patient’s Forums (Membership and Procedure) Regulations Clause 4 (1) (d) and (e) says:

(1) “...a person shall be disqualified for appointment if -

(d) he is an employee, officer or member of the NHS trust or Primary Care Trust for which the Patients’ Forum is established;

(e) in the case of a PCT Patients’ Forum, he is an individual who, or an employee, officer or member of an organisation which, provides services under arrangements made by the Primary Care Trust.


At a Norfolk PCT consultation meeting in early 2007 I understood it to be said that ‘Esther’, the person who took the chair at the April Norfolk PCT PPI forum meeting, was a non-executive director of Norfolk PCT. It didn’t register at the time but after the April meeting I mailed Jennie Billings saying:

“Yes it was a good meeting and I enjoyed it - despite my comments which look negative but that's because they are bald in the space provided. They're certainly not meant to be a criticism of the forum or your organisation (some good people there) - except the Chair's attempt to refuse information which should be transparently in the public domain (the names of the Mental Health working group). The excuse she tried to come up with is that she didn't have their permission and would be breaching the Data Protection Act; which is nonsense and her prevarication did annoy me (and I see it is she who is the token user on the PCT board!!!). Steve said he would let me have them. The other working groups are clearly identified in the action plan. And yes please name me - I'm never anonymous and always try to be transparent and straightforward.”


Jennie replied:

“Esther is the Deputy Chair of the Forum and was chairing the meeting in Anthony Darwood’s place who is the ‘token user’ on the PCT Board (perhaps not the wording I would have chosen J)”


Can you please investigate this and check that you don’t have Forum members who are also members of the PCT they are monitoring.

Comments

Popular posts from this blog

SURVIVOR HISTORY NEWSLETTER

>From Andrew Roberts Secretary Survivors History Group http://studymore.org.uk/ studymore@studymore.org.uk telephone: 020 8 986 5251 home address: 177 Glenarm Road, London, E5 ONB Survivor History Group Summer 2012 Newsletter The July London meeting of the Survivors History Group will be held on Wednesday 25.7.2012 from 1pm to 5pm at Together, 12 Old Street, London. Everybody is welcome and refreshments will be provided. The September meeting has had to be moved from a Wednesday to Thursday 27.9.2012 (subject to approval by this Wednesday's meeting) because of the availability of a room at Together.   -------------------------------------------------------------------- The agenda for the July meeting will be drawn up at the beginning of the meeting, but it will include Peter Campbell's regular report back on the research he is leading on the history of Survivors Speak Out and discussion of material received from other people about Survivors Speak Out.  Rick Hennelly has se...

The DLA and Workfare Scandals.

This ConDem Coalition is exploiting the apparent helplessness of disabled people by taking essential money away from them and forcing vulnerable people, for example, people with mental health difficulties. I remember, when I was a practising social worker, the horror experienced by service users when they received a letter summoning them to undergo a medical examination (25 miles away in Norwich). Some became absolutely terrified at the prospect and the stress of having to get to and face the appointment led to one or two relapses and hospital admissions. Against local authority policy, I always took them to the appointment, went in with them and supported them through the interview acting as advocate. The doctors at these reviews were employed by the Benefits Agency and usually retired from practice. They were also usually empathic with the service user and mostly helped to reduce the terror of the interview. The new 'Workfare' reviews which every DLA claimant will have to und...

inappropriate!!!

I tried to respond to a Patient Citizen Exchange blog by Laura Greene today. I said: Hello Laura. Welcome - and my admiration? for you "single-handedly representing the entire health voluntary sector and 1000+ PCX membership..." My first question has to be: what is the composition of the Strategic Advisory Board? And my second question: what proportion of service users to professionals is there on that Board? There are indeed millions of impatient citizens out there. They are called Service Users (primarily because 'Patient" carries the labels 'One that has things done to her/him'; 'One that is subservient to the "We know what is best for you" approach'; 'One that is at the wrong end of an imbalance of power.' etc). The Americans prefer the term 'consumers', but whatever, we should avoid the term with the negative connotations. I was listening to the 5 Live debate this morning on the Strictly Come Dancing row about whether...