tag:blogger.com,1999:blog-4660045811631095081.post4484140871427982034..comments2023-03-19T13:42:19.502+00:00Comments on PPlog: Does you Forum Lose its Favour...(as sung by Lonnie Donegan)PPLOGhttp://www.blogger.com/profile/16701123641471735958noreply@blogger.comBlogger1125tag:blogger.com,1999:blog-4660045811631095081.post-51275035299791537932007-10-21T22:19:00.000+01:002007-10-21T22:19:00.000+01:00Hi MikeWell you know what my experience of being o...Hi Mike<BR/><BR/>Well you know what my experience of being on a PPIF was like.<BR/><BR/>Most of the members were, I quote, 'nice people' but there was a real lack of impetus. The main focus seemed to be on getting paperwork right. Something which is very low on my list of essentials.<BR/><BR/>The Trust were very good at baffling with bureaucratic bullshit and I would watch as members' eyes glazed over whilst being referred to sub-section 27 of Section 33, page 1,468!!!<BR/><BR/>The end result of all the dross was that the chair moved on (due to lack of support..I did me best but 2 people don't make much of an oppostion). the vice chair got a full time job and stepped down and the remaining members carried on sitting their with glazed eyes.<BR/><BR/>I really did try my best but after raising issues in regards to 2 deaths within 2 months under the same local MH team and getting fobbed off with confidentiality crap and then being told that one of them "was ill and likely to have committed suicide anyway" (that was from a Trust Director)...I thought this ain't the place for anyone who cares about the mentally ill.<BR/><BR/>Also I was disgusted that someone from the DWP sat as a PPI member. Talk about clash of interests.<BR/><BR/>From what I have read..and I confess to have given up half way under the sheer weight of more paperwork..LINKS are going to be no better, in fact I fear worse.<BR/><BR/>With each change comes less accountability and less inclusion.<BR/><BR/>Until people with mental illness can contribute without being mainstreamed as in having to act and perform like bureaucrats..and there needs to be alot more thought going into how people with mental illness are supported, in their best interests, to contribute...then I see any such forums as a blockage to real inclusion.<BR/><BR/>Till there is a real shift towards listening to what people (as in the people seeking care) need from these forums...my advise to people with mental illness is to avoid them like a 'Let's all drink more water and become the rehydrated recovered' advertisement.<BR/><BR/>Not so much disillusioned as fully aware and having none of it!!<BR/><BR/>Mandy (Lifeboat at the ready)Anonymousnoreply@blogger.com